AABB Asks Congress to Support SCD Demonstration Project Legislation

October 04, 2021

AABB, as a part of a coalition of organizations, asked Congress to introduce legislation that authorizes the Centers for Medicare and Medicaid Services (CMS) to develop a program for Medicaid beneficiaries that would improve access to comprehensive outpatient care for individuals with sickle cell disease (SCD). In the letter – addressed to Sens. Cory Booker (D-N.J.), Tim Scott (R-S.C.) and Reps. Michael Burgess (R-Texas) and Danny Davis (D-Ill.) – coalition members outline a Medicare demonstration program that will focus on providing specialized and primary care in appropriate outpatient settings.

The organizations emphasized that patients with SCD have been impacted disproportionately by COVID-19 and continue to lack access to quality, state-of-the-art outpatient and preventive care. They also stated that due to the recent publication of clinical practice guidelines in SCD and approvals of new treatments for SCD, “there is no better time than now to improve the SCD community’s access to state-of-the-art care.” The coalition also reaffirmed their commitment to seeking co-sponsors and working with the committees of jurisdiction to move the policy and program forward.